Welcome to the 16th International Conference of Baltic Child Neurology Association (BCNA) taking place on 12-14 May 2022. We had previously planned for this meeting to be held in May 2021; however, it was postponed due to the COVID-19 pandemic. The difficult vaccination situation made us change the location from East Estonia, Narva-Jõesuu to Pärnu. At this point we do plan to have live conference so our guests can meet in person and enjoy scientific discussions and catch up after couple of years.
We do hope that the conference will provide an opportunity to learn about the latest developments in treatment, diagnoses and care in child neurology.
We are really looking forward to see you all in Estonia, in Pärnu.
Inga Talvik MD, PhD
President of the conference
SCIENTIFIC PROGRAM
12.05.2022
9.00-9.15 – opening remarks
Epilepsy
Chairs: Helen Cross, Inga Talvik
9.15-9.45 – H Cross: Novel therapies in epilepsy
9.45-10.15 – S Zuberi: Early childhood epilepsies, neonatal seizures
10.15-10.30 – J Strautmanis: Epilepsy surgery in Latvia: results of the first 5 years of prospective database
10.30-10.45 – U Andriusaityte: Variety of clinical symptoms in Dravet syndrome: a case series of 11 patients
10.45-10.55 – U Vaher: New national evidence-based guideline for management of epilepsy in girls and women of childbearing age
10.55-11.00 – D Burkojus: Testing patient during a seizure: a multimedia teaching material
11.00-11.30 Coffee
Epilepsy continues
Chairs: Sameer Zuberi, Anneli Kolk
11.30-12.00 – H Cross: Cannabinoids in the treatment of epilepsies
12.00-12.30 – S Pajusalu: Diagnostics of genetic epilepsy – beyond exomes and microarrays
12.30-12.45 – I Mičule: Seven years experience with comprehensive genetic testing of epilepsy patients in Latvia
12.45-13.00 – S Lilles: Drug-resistant epilepsy in children in Estonia
13.00-14.00 Lunch
Epilepsy continues, innovation
Chairs: Milda Endzinienė, Ulvi Vaher
14.00-14.15 – D Apela: Ketogenic diet for epilepsy treatment – efficacy and possible predictors – experience in Children’s Clinical University Hospital, Riga, Latvia
14.15-14.30 – J Karandienė: Fats against seizures: first experience of ketogenic diet therapy for childhood drug resistant epilepsy, Kaunas, Lithuania
14.30-14.45 – K Liaušienė: It is not all about ketones: the main challenges for families using ketogenic diet therapy, Kaunas, Lithuania
14.45-15.00 – M Endzinienė: Two cases of epilepsy with CHD2 mutation
15.00-15.15 – S Jackevičiūtė: Neurologic manifestation of ATP1A3 mutation
15.15-15.30 – R Laugesaar: Status epilepticus or migrainosus?
15.30-15.40 – A Kolk: Holographic display – technical miracle to manage children’s hospital fear
15.40-15.50 – C Kööp: Hospital fear – relevant topic for young doctors?
15.50-16.00 – K Kits: The power of humanoids: dimensions of child-robot interaction
16.00-16.10 – A Roštšinskaja: Social robots and virtual reality are ready to be deployed in social skills rehabilitation
16.10-16.30 – W van Emde Boas: BCNA through the ages
16.30-17.00 Coffee
17.00-18.00 – Poster session I
Chairs: Sameer Zuberi, Jurgis Strautmanis
J Grikiniene: Seizures associated with vitamin B12 deficiency in infant of vegan mother
I Kasiulevičiūtė: Preventive antiepileptic treatment in tuberous sclerosis complex: 3 case reports
M Putne: Parental knowledge and attitude towards pediatric epilepsy in Latvia
A Saulītis: Public knowledge and attitude towards epilepsy in general population of Latvia
E Veignere: Educational institution employee attitude and knowledge towards epilepsy in Latvia
L Gumbelevičienė: Vagus nerve stimulation in children: data from the hospital of Lithuanian University of Health Sciences, Kauno Klinikos
E Millere: Primary headache characteristics in emergency department
D Zabielaitė: The burden of headache in children and adolescents in Lithuania
18.30 Welcome party
13.05.2022
8.00-9.00 Poster session II
Chairs: W van Emde Boas, Katrin Õunap
B Burnyte: Coffin-Siris syndrome-12: a case report
B Burnytė: Kleefstra syndrome type 2: a case report
D Burkojus: Case presentation: Early infantile Krabbe disease
D Runkauskaitė: Clinical signs of the neuronal ceroid lipofuscinosis type 2
I Kopyta: Selected risk factors in dependence to the type of cerebral palsy
R Traberg: Case report of KBG syndrome, rare genetic disorder associated with intellectual disability
K Merkevičius: Migraine like headaches in Osler-Weber-Rendu syndrome
RR Apse: Early childhood sleep problems in Latvia – parent perspective and recommendations by medical community
Autoimmune and rare diseases
Chairs: Katrin Gross-Paju, Milda Dambrauskienė
9.00-9.30 – D Dubey: Autoimmune encephalitis
9.30-10.00 – K Gross-Paju: Update of SM in children
10.00-10.10 – T Meren: Who wouldn’t like to be younger? A case of MOG antibody encephalitis
10.10-10.20 – S Jackevičiūtė: A retrospective diagnosis of anti-GAD65 autoimmune encephalitis
10.20-10.30 – D Burkojus: CASPR2 antibody-associated disease
10.30-11.00 – K Õunap: Rare disease discovery and care in Estonia
11.00-11.30 Coffee
Genetics, neuromuscular diseases
Chairs: Nerija Vaičienė-Magistris, Eve Õiglane-Šlik
11.30-11.45 – L Ambrozaitytė: Wide spectrum of nuclear DNA diagnosis in patients with suspected mitochondrial disease
11.45-12.00 – G Senkevičiūtė: Diagnostic outcomes of next-generation sequencing in children with neuromuscular disorders
12.00-12.15 – S Setlere: Charcot-Marie-Tooth disease in paediatric patients
12.15-12.30 – B Lace: Non-dystrophic congenital myotonia – the most frequent neuromuscular disorder in Latvia
12.30-12.40 – L Roht: Myotonic dystrophy type 1- different clinical manifestations in one family
12.40-12.50 – T Meren: The descriptive epidemiology of glucose transporter type 1 deficiency syndrome in Estonia
12.50-13.00 – R Traberg: Case report of Coats plus syndrome associated with pathogenic variants in CTC1 gene
13.00-14.00 – Lunch
Neuromuscular diseases
Chairs: Carsten Bönnemann, Sander Pajusalu
14.00-14.30 – C Bönnemann: Emerging opportunities for gene and transcript directed precision therapeutics for rare neuromuscular disease of childhood
14.30-15.00 – Werner Stenzel: Acquired muscle diseases in childhood- how can myopathology contribute?
15.00-15.30 – P Fuchsová: A clinical reality of SMA patient treatment today, situation in Czech Republic (Novartis)
15.30-15.45 – D Seile: Latvian experience: Spinal muscular atrophy genetic screening
15.45-16.00 – M Dambrauskienė: Treatment of spinal muscular atrophy: a 5-year experience from a single center for neuromuscular diseases
16.00-16.15 – TL Cupane: The results of spinal muscular atrophy genetic therapy, Latvia
16.15-16.30 – I Talvik: Treatment of spinal muscular atrophy in Estonia
16.30-17.00 – Coffee
17.00-17.30 – Poster session III
Chairs: W van Emde Boas, Sameer Zuberi
J Strautmanis: Age at loss of ambulation in patients with DMD from the STRIDE registry and the CINRG natural history study: a matched cohort analysis
J Andreikėnas: Critical illness-associated weakness after prolonged treatment in intensive care unit
J Karandienė: Awakening of the sleeping beauty: first case of childhood narcolepsy treatment with pitolisant in Lirthuania
R Stankevičiūtė: A case of possible severe exacerbations of myasthenia gravis and myasthenic crisis after COVID-19 infection
K Kozlova: Lack of knowledge about pediatric sleep related problems in Latvian physicians
18.30-22.00 Gala dinner
14.05.2022
Varia
Chairs: Rima Nabbout, Rael Laugesaar
8.45-9.15 – R Nabbout: FIRES
9.15-9.45 – R Nabbout: Autoimmunity in epilepsy
9.45-10.15 – S Zuberi: Nonepileptic paroxysmal events in childhood
10.15-10.30 – N Vaičienė-Magistris: Prevalence of headache disorders in school-aged children in Lithuania: contribution to the global knowledge of child and adolescent headaches
10.30-10.45 – E Millere: Use of neuroimaging for pediatric headache patients in emergency department
10.45-11.00 – M Celmina: Pediatric sleep problems in Latvia: underdiagnosed and overmediated
11.00-11.30 Coffee
Stroke, COVID-19
Chairs: Pilvi Ilves, Irja Lutsar
11.30-12.00 – P Ilves: Risk factors, radiological findings and neurodevelopmental outcome in children with perinatal stroke
12.00-12.15 – N Ilves: Language outcome and lateralization in perinatal stroke patients with arterial ischemic stroke and periventricular venous infarction
12.15-12.30 – K Kivisikk: Intraarterial thrombectomy in two children with children with basilar artery thrombosis
12.30-12.40 – M Vaišvilas: A case of possible COVID-19 associated focal cerebral arteriopathy induced ischemic stroke in a previously healthy child
12.40-13.10 – I Lutsar: COVID-19 and CNS in children
13.10-13.20 – S Kovaļovs: Neurological complications following SARS-CoV-2 infection in children – a case series
13.20-13.30 – Closing remarks
13.30 Lunch and farewell
INVITED SPEAKERS
Prof J Helen Cross (UK)
Prof Sameer Zuberi (UK)
Prof Rima Nabbout (France)
Dr Marina Nikanorova (Denmark)
Prof Walter van Emde Boas (Netherlands)
Dr Divyanshu Dubey (USA)
Prof Carsten Bonnemann (USA)
Prof Werner Stenzel (Germany)
Prof Katrin Gross-Paju (Estonia)
Prof Pilvi Ilves (Estonia)
Prof Katrin Õunap (Estonia)
Dr Sander Pajusalu (Estonia)
Prof Irja Lutsar (Estonia)
ONLINE REGISTRATION
Registration for the 16th International Conference of Baltic Child Neurology Association (BCNA) will start in November 2021.
Early registration deadline extended to March 15, 2022!
VENUE & ACCOMODATION
VENUE
Strand SPA & Conference Hotel
H. Tammsaare pst 35
80010 Pärnu
Estonia
The congress venue is the Strand SPA & Conference Hotel. For detailed information on how to reach the venue please consult the website of the Strand SPA & Conference Hotel. For booking accomodation please read below.
ACCOMODATION
Strand SPA & Conference Hotel
H. Tammsaare pst 35
80010 Pärnu
Estonia
Please book accomodation through the following contacts, as booking through the internet (e.g. booking.com) it will be impossible to change the price.
Use the code “BCNA 2022” for a discount.
Please contact the hotel staff:
Karita Hiis
Reservation Manager
sales@strand.ee
Phone: +372 447 5389
or the general reception:
Reception@strand.ee
Phone: +372 447 5370
Be prepared to send the following information
1. Number of people staying in the room
2. Twin or double bed
3. First and last name
4. Date of arrival and departure
5. Date of birth
6. Citizenship
7. Contact phone and e-mail address
8. Extra information, if necessary
Accommodation prices:
64 € / single standard room / 1 night
72 € / double standard room / 1 night
The price includes: buffet breakfast, use of spa, parking in the hotel parking lot, VAT
ABSTRACT SUBMISSION
Call for Abstracts
Submission of ABSTRACT is now CLOSED
The 16th International Conference of Baltic Child Neurology Association (BCNA) welcomes submission of abstracts for original contribution to the field.
Abstract submission deadline extended to March 15, 2022!
SCIENTIFIC & LOCAL ORGANIZING COMMITTEE
Scientific Committee
Inga Talvik (Estonia)
Jurgis Strautmanis (Latvia)
Milda Dambrauskienė (Lithuania)
Local Organizing Committee
Inga Talvik
Eve Õiglane-Šlik
Teele Meren
Stella Lilles
Rael Laugesaar
Klari Heidmets
Valentin Sander
Kadre Saare
SPONSORS
